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I originally started this blog to share my son journey as a SWAN (Syndrome without a Name) & I now include his younger sister who was born profoundly deaf so has her own journey too..,occasionally I will mention my older 2 kids who have no issues, it is just a place where I can get my feelings/thoughts out of my head & also to raise awareness...
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Showing posts from September, 2015
A letter to my MP about rare & undiagnosed conditons
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Professionals v Understanding & Awareness
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